Back in...

Evynn was admitted to SickKids again Thursday evening because of abdominal pain, vomiting and trouble digesting her solid foods. She still seems happy between the intermittent episodes of discomfort. She has had different ultrasounds and X-rays to determine what's going on. So far doctors are still unsure.

On happier note... We are pleased to say that one of her little boyfriends received his heart transplant and is doing great!

A Step Backward...

Evynn had her sedated echo on June 6th, the results show that her tricuspid valve has again begun to leak.  It is currently a moderate leak, is not as bad as where it was at the beginning of the year, but it has definitely gotten worse in the last 6 weeks.  Her cardiologist has left her on 'hold' for a transplant.  So for now there is still no plan...

First Birthday!!!

Thank you to everyone for all the prayer and support over the last year.  It has been a year full of trails.
Evynn enjoyed her first birthday surrounded by friends and family at a Carnival themed party this past Sunday.  Although the humidity caused Evynn to leave her party early, she was still able to enjoy seeing everyone.  Thank you to everyone who donated to SickKids as a birthday gift, we raised over $1000 for the Cardiac Critical Care Unit!
Evynn has another sedated echo on June 6th.  Until then she remains on 'hold' for the heart transplant.  As of right now there is no plan for Evynn's heart.  It is a wait and see game.  She has been stable and doing well on the current medications.  Her g-tube has been causing some issues though, it was pulled out part way only 2 weeks after it was inserted and now will have to be replaced.

WOW!!!

Since the beginning of the week, Evynn has been feeling better. Her cardiologist is still unsure why she had declined so much, but assumes it was a combination of a virus and CHF. Evynn had a sedated echo on Thursday to investigate whether her heart was getting worse. The previous sedated echo (a few months ago) showed that Evynn's tricuspid valve was 'severely' leaking and was to blame for needed a transplant. The echo reported her leak is now only 'mild' and for now doctors are considering whether Evynn will even need a transplant! She may instead be headed for the original 3rd stage surgery. Still a very uncertain journey, but incredible news for now.

Evynn's Update

Evynn is staying at SickKids until the doctors can rule out a cold virus, bacterial infection (like last time) or if her body is no longer tolerating the medications and they need to be adjusted. They are keeping Evynn on continuous feeds to keep small amounts of milk in her stomach at all times to see if this will help stop the vomiting. She has lost a little weight but is still generally her happy self, as long as she's safe in Mom's arms.

April Showers bring... Evynn back to Sick Kids

Evynn and Mom are back at Sick Kid due to an unexplained fever and increased CHF (Congenital Heart Failure) symptoms. She is in good hands and doing okay for now but could use some prayers.

Evynn and Grandma at Easter 

Showing off her Bravery Beads.

Evynn has received a bead for every injection, blood work, x-ray, surgery etc. she has endured...