Wednesday 30 May 2012

First Birthday!!!

Thank you to everyone for all the prayer and support over the last year.  It has been a year full of trails.
Evynn enjoyed her first birthday surrounded by friends and family at a Carnival themed party this past Sunday.  Although the humidity caused Evynn to leave her party early, she was still able to enjoy seeing everyone.  Thank you to everyone who donated to SickKids as a birthday gift, we raised over $1000 for the Cardiac Critical Care Unit!
Evynn has another sedated echo on June 6th.  Until then she remains on 'hold' for the heart transplant.  As of right now there is no plan for Evynn's heart.  It is a wait and see game.  She has been stable and doing well on the current medications.  Her g-tube has been causing some issues though, it was pulled out part way only 2 weeks after it was inserted and now will have to be replaced.