Yesterday the surgeons were able to locate a few sources of bleeding that they thought they could resolve. For a few hours the bleeding had decreased by half, but because of the amount of anti-coagulant needed for ecmo she continues to bleed. She is back to needing over 100ml/hr of blood products. Her body only holds 1000ml so her blood is completely being replaced in less then a day or days in a row now. That alone is extremely hard on a body.
They were able to get a ectopic biopsy done without upsetting her heart. Results are not back 100%, so far seem as though there is no rejection.
The echo showed that her heart squeeze is back to where it was before the arrest which is good. But the relaxation of the heart (how much it can fill up to then push out) is getting worse. They say her heart needs to 'soften' as it is still too stiff. If they can get the bleeding under control, the stiff heart will be her biggest issue as the only thing that can help that is time and Evynn herself.
Last night we had the joy of seeing her off of muscle relaxers for an hour. She moved all her limbs, asked for water and nodded answers to questions. Amazing signs that her brain is still healthy!
Today they are investigating the bleeding again hoping to caughterize and resolve bleeding sources. If they can't then she doesn't have a hope. They are doing another echo and will clamp off the ecmo to see what her heart can to on it's own. They doubt they can take her off ecmo yet, but wish they could as that would also help the bleeding because of the anti-coagulants.
Praying for a softened heart...
Update... Found more bleeding sources and attempted fixes, so far (only been hour) really good. Heart still stiff.
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