HEARTS 4 HEARTS... A BIG THANK YOU!!!!!!

Thank you so much to all of you who came out and supported our goal of raising money for Ipads for the Cardiac Unit!  So far we have raised $1890!  We have almost raised enough to buy 4 Ipads for the Unit.
It was FABULOUS night and we are so grateful to IL FORNELLO's Ajax for facilitating the event.

For anyone still wishing to contribute, the on-line donation page is still open.  Just klick on the following link; Community Involvement PET pages

HEARTS 4 HEARTS Fundraising link

Community Involvement PET pages

Here is a link for all of you who can not make it for dinner.  Just click on the Community Involvent PET pages title above.  Thanks for your help!

HEARTS 4 HEARTS

We are so grateful to SickKids for the past three years.  We would like to celebrate Evynn turning 3 by giving back.  

Hearts 4 Hearts

FUNDRAISING FOR CHILDREN AT SICKKIDS HOSPITAL

Thank you SickKids Evynn turned 3!

Wednesday, June 25^th 2014

5pm – 8pm

IL FORNELLO

95 Kingston Rd E

Ajax, ON L1S 7J4

With donation, a special dinner menu will be offered for this event.  Choice of first course & second course & soft drink for $15 incl. tax, 1 child per adult eats free.  BYOB Wine only with no dispensing fee.

Reservations required at ajax@ilfornello.com or 905 427 1110

DONATIONS WILL GO TOWARDS PUCHASING IPADS FOR IN-PATIENT USE AT SICKKIDS HOSPITAL 

Another Heart Catheterization....

Evynn had to have another Heart Catheterization last Thursday.  Her cardiologist is investigating the strange edema around her next.  It started as Evynn got the flu, 2 months ago but has not improved since.  She has had an ultrasound of her neck looking for clots and an echo to see if her heart function had changed.  Both of those tests did not show any reason for the edema.  The heart cath was to gather more information about what's going on with her heart & lung pressures.  But the results also do not explain this edema.  Evynn does have edema else where, which is often seen with her condition but this is unusual...  We are again at in a "watch and see" game.  No one is comfortable with what they see but  they don't have answers either.

The Labatt Family Heart Centre at SickKids

These people are Evynn's extended family.  They are the reason she is with us today.  Doctor VanArsdale is her surgeon.

Heart catheterization done.

Evynn had her heart catheterization today.  Her cardiac team as all concerned about what they might find and whether her heart would even tolerate the procedure.  They didn't find anything unusual.  The surgeon decided the only explanation was her large fenistration in her heart (intentional hole from the Fontan).  They tested closing it during the cath and found her pressures to be good.  The surgeon closed her fenistration which stopped the mixing of her red & blue blood.  She is back in her own room on the cardiac ward.  She is pink!  Evynn's oxygen saturation levels are 98%, her heart rate & respiratory rate have both come down.  We were warned that it could be weeks to months to know whether she tolerates this step this early.  We have to watch that the plural effusion (fluid around lung) doesn't come back and that her blood pressure doesn't drop too low.  Today, she is recovering well.

Home & Back

Evynn was home for a short stay.  She was discharged last Thursday because although not perfect, she seemed to be improving and could recover at home.  She spent the week at home on the couch or in someone's arms. Her energy progressively got lower and she continued to vomit in her sleep once a day. At her clinic visit on Wednesday, she saturation levels were all over the place depending on her position and which limb the prob was measuring.  Her left leg was also cool compared to the right and she complained of pain in that leg.  She did have pluses in both legs but the left was weaker.  Her cardiologist did not like any of her symptoms.  First thing Thursday morning Evynn had a sedated echo, followed by a chest x-Ray, ultrasound of leg and blood work.  Echo showed no changed in function of her heart, and no change in the leaky valve (mild/moderate).  X-Ray showed lungs look great with no fluid around them. Blood work was also good. Ultrasound showed there is an arterial clot with collateral arteries that have formed around it allowing some blood flow.  Evynn will be having a heart catheterization some time next week to look for more answers.