Sunday, 14 June 2015

Running out of time...

Evynn will be discussed again on Monday at surgical conference. Although she has made some small gains, we are running out of waiting time for her heart to soften enough to keep her blood pressure up.  Tomorrow her surgeon and others who have been caring for her will look for a plan to give her more time to soften that heart. Unfortunately, from our understanding now the risk of losing her personality and only keeping a body alive will increase with further intervention. We will be forced to weigh the risk.
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6 comments:

  1. Unknown14 June 2015 at 07:36

    Such a perfect picture of her. Thinking of you and the whole family.
    Sheri

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  2. Ashley14 June 2015 at 08:09

    I'm praying for your family and your beautiful baby girl today. I can't begin to imagine how hard this is for all of you but you're in my thoughts.

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  3. Unknown14 June 2015 at 12:28

    In My Thoughts

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  4. Unknown15 June 2015 at 10:10

    I'm keeping Evynn in my prayers every day. Hoping for time and a softening heart. Keep fighting little warrior.💜

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  5. Unknown15 June 2015 at 12:21

    In my prayers every day. Soften the heart.

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  6. mamaeco15 June 2015 at 16:29

    I don't know you outside of the hearts of 4d group but you are constantly in my thoughts ♥

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