Evynn's heart has gone into a JET (junctional ectopic tachycardia) rythm, with a high heart rate, and decreased heart function. They are agressively trying to lower her heart rate so they can bully it into a good rythm with an external pace maker. Evynn's heart rate goes up every time we talk to her or touch her.
Later today Evynn had her chest opened back up to give her heart more room to "do what it needs to" because she was not responding to the drugs. She may need to be put on an ECMO (extracorporeal membrane oxygenation.)
Been following your blog for a long time as my second boy, Lincoln, was born with HLHS in June.
ReplyDeleteI will keep Evynn, her special heart, and the cardiac team in my prayers.