Sunday, 25 September 2011
NG feeding running our lives...
Evynn has been discharged from SickKids with the NG tube. She still has a cold but her symptoms & sats have improved. We are now trying to manage the feeding routine which is beyond ridiculous. The whole process of sterilizing, mixing, warming, oral feeding, ng tube top-up, sterilizing again and then pumping for the next feed takes 1 1/2 hrs. This has to be done every 3 hrs around the clock. Not sure where sleeping and other daily activities fit in there.
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