Sunday 25 September 2011

NG feeding running our lives...

Evynn has been discharged from SickKids with the NG tube.  She still has a cold but her symptoms & sats have improved.  We are now trying to manage the feeding routine which is beyond ridiculous.  The whole process of sterilizing, mixing, warming, oral feeding, ng tube top-up, sterilizing again and then pumping for the next feed takes 1 1/2 hrs.  This has to be done every 3 hrs around the clock.  Not sure where sleeping and other daily activities fit in there.

No comments:

Post a Comment