NG feeding running our lives...

Evynn has been discharged from SickKids with the NG tube.  She still has a cold but her symptoms & sats have improved.  We are now trying to manage the feeding routine which is beyond ridiculous.  The whole process of sterilizing, mixing, warming, oral feeding, ng tube top-up, sterilizing again and then pumping for the next feed takes 1 1/2 hrs.  This has to be done every 3 hrs around the clock.  Not sure where sleeping and other daily activities fit in there.

Evynn and her Mom are back at SickKids

Evynn has recently been re-admitted to Sick Kids. Due to her cold her weight gain has been compromised and the doctors have put her on a NG tube (nasogastric) for feeding.  Evynn is not impressed with this tube at all, in fact she is rather infuriated. While at Sick Kids she will undergo echo's (Echocardiogram) and they will monitor her NG tube intakes.

Evynn is also having X-rays taken to make sure her cold is not an infection. The X-rays will check for fluid in her lungs as well as around her heart. As weight gain is the major concern right now, when she is discharged Evynn will be going home with the NG tube until her weight is at a suitable level for her upcoming surgery.

Cold & Flu Season

Back to school for us, now means GERMS!  Evynn has her first cold which causes a lot of concern.  Her appetite has gone way down, so she has now lost essential weight, and because of the stuffy nose her saturation levels have decreased as well.  If the saturation levels go down any farther she will need to stay in the hospital on oxygen.  She avoiding that for now... but it's going to be a LONG cold & flu season.

Weight Problems

Yesterday was another long day at SickKids, but this time the cardiologist is happy with her saturation levels.  Echo results are good although the sedation is a nightmare ordeal.  The oral drug is torture for the babes.
We are increasing the concentrated feeds, because this past week she has only gained 25g, which is what she should be gainning in a day!  Evynn does not like taking her bootle from me, but will let her dolly feed her... so we do what we can.