Back to CCCU

Evynn is back in the CCCU. She has a chest x-ray this morning which showed fluid building around both lungs. The right lung had the most and was causing it to collapse.  After having an ultrasound of her lungs, they decided to bring her back to the CCCU in case they need to insert a chest tube. Her surgeon is hoping that treating with aggressive diuretics will remove the fluid. They have also increased her oxygen back to 5L (she was down to only needing 1.5L).  She is comfortably sleeping now and we pray this is only a small bump.

Fluid Overload

Evynn is still really uncomfortable & miserable.  Her morphine has been increased to try to make her more comfortable. She is really fluid overloaded.  Which is making it harder for her to breath. They have ordered a chest x-ray to see if there is fluid building up around her right lung (because they couldn't get a chest tube in during surgery).  May have to have one put in if there is fluid.  These bumps were expected though.

Out of CCCU

Evynn was discharged from the CCCU to the cardiac ward this morning. She has been weened for of her heart meds, but is still needing oxygen and morphin.  Her surgeon is keeping a very close eye on her. She is still at risk of having set backs but has been recovering well so far.

Evynn is in the CCCU awake & extubated.  She is miserable and on pain meds but clinically doing well.  Her cardiologists & surgeon are pleased so far....

In O.R.

Evynn went into the O.R. at 7:55am.  Dr. Van Arsdale feels it will be a longer than usual Fontan due to her complex anatomy. We will not hear updates until after 2pm most likely.  He called Evynn a 'boarder line candidate', due to the amount of diuretics she requires. He is not confident she will tolerate this way of blood flow, but feels it's the best option for her... If she does not tolerate he will have to 'take it down' back to the way it is now and try something else later.

Change of plans again...

Just got the call, the Fontan surgery is now set for this Thursday, October 31st....

Fontan rescheduled..

Evynn's Fontan surgery was cancelled for today due to her surgeon needing to be somewhere else.  She has been rescheduled for November 13th.  More waiting...