Friday, 1 November 2013

Out of CCCU

Evynn was discharged from the CCCU to the cardiac ward this morning. She has been weened for of her heart meds, but is still needing oxygen and morphin.  Her surgeon is keeping a very close eye on her. She is still at risk of having set backs but has been recovering well so far.

Thursday, 31 October 2013

Evynn is in the CCCU awake & extubated.  She is miserable and on pain meds but clinically doing well.  Her cardiologists & surgeon are pleased so far....

In O.R.

Evynn went into the O.R. at 7:55am.  Dr. Van Arsdale feels it will be a longer than usual Fontan due to her complex anatomy. We will not hear updates until after 2pm most likely.  He called Evynn a 'boarder line candidate', due to the amount of diuretics she requires. He is not confident she will tolerate this way of blood flow, but feels it's the best option for her... If she does not tolerate he will have to 'take it down' back to the way it is now and try something else later.

Tuesday, 29 October 2013

Change of plans again...

Just got the call, the Fontan surgery is now set for this Thursday, October 31st....

Thursday, 24 October 2013

Fontan rescheduled..

Evynn's Fontan surgery was cancelled for today due to her surgeon needing to be somewhere else.  She has been rescheduled for November 13th.  More waiting...

Monday, 16 September 2013

Fontan

Evynn's surgery, the Fontan, has been set for October 24th.  Now we need to keep her "healthy" until then... as we head into cold and flu season...

Thursday, 12 September 2013

Forward to Fontan

The SickKids cardiology team has decided to go straight to the Fontan surgery.  They reviewed her echos and heart catheter data and decided the only surgery that will solve Evynn's low saturation issue is the Fontan.  They feel that her valve is probably not leaking as bad as the reports say (reports are subjective) and that the blood pressure in her heart are as good as any pre-Fontan candidate.  A date for her surgery has not been set yet, we will find out soon.  It will be sometime in the next 2-3 months.