Tuesday, 26 May 2015

THE BEST BIRTHDAY GIFT EVER!!!!!!!!! (includes CCCU picture)

Evynn received the best birthday gift she could ever hope for!  Sunday night she was given a new heart, it first started beating just after midnight on her actual birthday.  We are so gratefully and truly understand the meaning this gift.

She is currently recovering in the CCCU.  Her chest is still open because of the inflammation.  She still requires a long list of medications (Epinephrine, vasopressin, isoproterenol, norepinephrine, milrinone) to stabilizer her.  She is on muscle relaxant and morphine.  She is on the ventilator.  The plan is to just let her rest.  The team did not expect her to recover quickly as her last surgery, the Fontan, makes adjusting to transplant more difficult.  For now she has avoided ECMO (portable bypass machine).  Although the picture looks like her eyes are open, she is not fully awake.  She does have moments of demonstrating that she is aware of touch and my voice.


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  2. What a wonderful gift. We continue to pray for her recovery as well as for you two to get rest and stay strong!