Friday, 15 November 2013


It has been a challenging week for Evynn.  She has had many blood tests trying to find the proper does of Coumidan (warfarin), which is needed because of the fenestration in her heart.  She was put on the minimal fat diet due to the chyle thorax.  Her chest tube has been clogged, leaking and causing pain.  Evynn has had numerous x-rays because of the chest tube being blocked and causing fluid to build up again around her lungs. Yesterday, there was much debate as to whether they should remove the tube because it wasn't draining but after the surgeons injected tpa it started draining this morning, and has drained over 120mls today.  Her saturation levels are still fluctuating.  Although it looked hopeful, she will not be discharged this weekend.

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