Surgery soon...

 Evynn had a heart catheterization on Friday.  The cardiologists were looking to see if she had created venovenous collaterals (new arteries), which could have explained the increase in cyanotic spells (turning blue).  They did not find any but did find that there is narrowing of her aorta, which could explain a lack of energy.  She still has moderate leaking of her valve, and after exploring all other reasons for her increase in CHF symptoms, her cardiologist has concluded that it is time for surgery.  The team of cardiologists and surgeons will discuss Evynn on September 9th to decide if a mechanical valve replacement is still her best bet.  They will then set a date for surgery soon after that.  Evynn has been discharged to wait at home despite the fact that she continues to de-sat into the low 60s with minimal activity.  For the most part she is happy and tolerating her condition.  But no one is comfortable leaving her this way for long.