Evynn finally had her heart catheterization last week. The results showed her ventricle pressures are better then expected. The surgeons discussed possible options for Evynn considering her valve is still leaking and she still requires a fair amount of diuretics. At this time they feel she should not remain on the heart transplant list because a valve repair or replacement maybe a possibility. So she has officially been taken off the wait list again. Her surgeon and cardiologist do not want to rush into anything, so for now we are back to having no set plan except "wait and see what she does". Evynn continues to have low saturation levels fluctuating around 75%, random vomiting and cyanosis.
Despite all this... she is full of personality and joy.