Waiting Again...

Evynn was discharged from SickKids on Thursday last week.  Her random discomfort seems to be under control with the increase of her reflux medication.  She continues to vomit and retch daily.  There does not seem to be a pattern to what will make her vomit, some times even offering her food will make her retch.  After searching for every reason for the vomiting and changing her formula to a more 'broken down' kind, the consensus is that she is just showing more CHF symptoms.
The transplant team, cardiologists and the surgeons discussed Evynn on Monday and decided to re-list Evynn for a heart transplant.  She is considered a moderate - to high risk transplant because of her condition, past surgeries and sensitivity to other tissue types.  So we wait....