As part of the work up to transplant, Evynn has had to undergo many tests & scans. Yesterday, was the GFR (glomerular filtration rate) scan to measure her level of kidney function.
Her blood work included; type + screen, anti-HBS IgG, cmv IgG semiquantitative, cmv IgM, cmv PCR, EBV serology, Hepatitis B surface AG, Anti-HBc AB, Anti-HBe AB, Anti-HBs IgG, Anti-HCV IgG, CBC, IgA, IgG, IgM, HBeAg, HBsAg, HIV Ag/Ab combo screen, HSV IgG, HSV/CMV/EBV PCR, Isohemagglutinin Titre, LMWH (enox level) Toxoplasma gondii IgM, VZV IgG, VZV/HHV6/HHV7 PCR. She has blood work done almost every other day and sometimes twice a day, which lead to needing a 70ml blood transfusion. Her cardiologist attempted another try with captapril (heart function med), the first time it dropped her blood pressure to 40/p. This time she tolerated the first dose, they will continue to up the dose for the next few days. They are still thinking that once her meds sorted out she should be able to wait for a heart at home.