Evynn's CHF symptoms have continued to increase. She had a sedated echo done a couple of weeks ago. The echo showed no changes to her heart function and still a moderate leak of the tricuspid valve. So no real explanation as to why she is showing more symptoms. On top of that, Evynn picked up one of those bugs that have been getting everyone. For almost 2 weeks, she was having a hard time keeping any of her feeds down, lacked all energy and was miserable. We struggled to keep her hydrated, resorting to feeds consisting of mostly coconut water. She has turned a corner now and is feeling a bit better, although still showing her CHF symptoms.
Evynn was presented recently to the SickKids team of cardiologists and surgeons to re-discuss her plan. For now they feel transplant is still her only option. Considering she is one of the more "stable" children listed, she will continue to wait. The transplant list continues to grow, two more cardiac friends were listed for heart transplants last week. Evynn will be having a heart catheterization done with in a month to better understand what's going on inside her heart. After that, the team will decide whether a valve replacement would be beneficial in helping Evynn through the long wait.
